The ASID registry is an organized, living list of patients with a shared condition their diagnoses, treatments, outcomes collected with consent and held securely.
The ASID Registry was established to address the critical need for centralized patient data regarding Primary Immunodeficiency Disorders (PIDs) across the African continent. By fostering collaboration between countries, we aim to improve diagnostic accuracy, standardize treatment protocols, and enhance patient outcomes through data-driven advocacy.
We envision an Africa where every patient with a Primary Immunodeficiency Disorder has access to early diagnosis, specialized care, and optimal treatment, regardless of their location.