A clear, data-driven roadmap to improving Primary Immunodeficiency care and advocacy across the African continent.
To create a robust, secure, and centralized database that captures comprehensive clinical information on individuals with Primary Immunodeficiency Disorders across Africa.
To increase awareness among healthcare professionals and the public, leading to earlier diagnosis and initiation of life-saving treatments for PID patients.
To facilitate epidemiological and clinical research that identifies regional patterns, genetic predispositions, and treatment efficacy specific to African populations.
To provide evidence-based insights to national governments and regional health bodies to advocate for the inclusion of PID care in public health priorities and essential medicine lists.